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You’ve just left your doctor’s office after being told you have COPD. You’re likely to be experiencing a number of different emotions right now ranging from confusion, to fear, to more confusion. Once you arrive home, you realize you were so overwhelmed by the diagnosis, you forgot to ask important questions about the disease and how it will affect your life. You’ve come to the right place. The most frequently asked questions about COPD are listed below to help you fill in the blanks before your next appointment. Read on to discover the most common COPD FAQs you want answered.
COPD, which stands for chronic obstructive pulmonary disease, is a long-term, progressive lung disease that makes breathing more difficult. Although the lungs are its primary target, the disease affects other parts of the body as well.
Approximately 80% of COPD cases are caused by smoking, but never-smokers can also develop the disease. In addition, COPD can be caused by a rare, inherited condition known as Alpha-1-antitrypsin deficiency. Second hand smoke, air pollution, especially from burning biomass fuels in poorly ventilated homes, and workplace exposure to chemical fumes, dust, and smoke also play a role in its development.1
Although there is no cure for COPD, it is preventable and treatable. By quitting smoking, staying physically active, eating nutritious foods, and following your treatment plan, you may be able to slow the progression of the disease and prevent it from rapidly worsening.1
That’s a great question and one that many people ask. Research supports that smoking cessation is the most effective way of halting or slowing the progression of COPD, which means that quitting at any stage is beneficial to your health.
Getting regular, physical exercise is one of the best ways to reduce COPD symptoms. Many people with COPD abstain from regular exercise because it causes breathlessness. This results in an endless cycle of progressive inactivity and worsening breathlessness. If shortness of breath interferes with your ability to stay physically fit, talk to your doctor about enrolling in a formal pulmonary rehabilitation program.1
COPD is characterized by exacerbations, or periods of worsening symptoms. Exacerbations are the number one reason people with COPD visit the emergency room. Preventing a COPD exacerbation is one of the most important aspects of treatment. This can be accomplished through frequent hand washing, flu and pneumonia vaccines, staying away from sick people, getting regular exercise and eating a healthy diet.1
Not all people with COPD require treatment with supplemental oxygen. For those who do, oxygen needs vary from person to person. For example, you may need it all day, every day, or for only part of the day during physical activity or sleep. Your doctor will determine if you need oxygen therapy and how often you should use it.1 Don’t forget, Inogen can provide a solution to all your oxygen needs, whether you prefer an in-home unit like the Inogen At Home, or a lightweight, on-the-go solution like the Inogen One G3.
According to the Global Initiative for Obstructive Lung Disease, COPD is divided into 4 grades, or stages: Stage I, mild COPD; Stage II, moderate COPD; Stage III, severe COPD; and Stage IV, very severe COPD. Which stage you’re in is determined by a breathing test called spirometry. Treatment options vary depending upon the severity of the disease, but may include implementing lifestyle changes such as smoking cessation and eating right, as well as increasing physical activity, flu and pneumonia vaccines, medication (including bronchodilators and steroids), pulmonary rehabilitation, supplemental oxygen and lung surgery.
Although no one can predict how long you’ll live after a diagnosis of COPD, some scientists rely on a tool known as the BODE Index to predict survival. The BODE Index measures a number of different factors that are thought to be associated with COPD life expectancy, including whether or not you quit smoking (if you’re a smoker), your tolerance to exercise, your degree of lung impairment, how much body fat you have and the severity of your breathlessness. Luckily, smoking cessation and pulmonary rehabilitation have been found to increase survival in some people with COPD.
As we mentioned in the first question, smoking isn’t the only cause of COPD: secondhand smoke, genetics, air pollution and workplace exposure may also increase your risk. Additionally, because COPD is progressive and symptoms may not be evident in the early stages of COPD, people who quit smoking years ago can still develop the disease.1
Surgical options for COPD include bullectomy, lung volume reduction surgery (LVRS for short, performed invasively or with a bronchoscope) or a lung transplant. Only patients in the very advanced stages of the disease who meet strict criteria may be candidates for lung surgery. LVRS and lung transplants may prolong life and improve quality of life for a select group of patients. For more information about COPD and lung surgery, please consult your primary care doctor.
It is not uncommon to forget to ask important questions when you first get a diagnosis. A COPD diagnosis, in particular, can be frightening and overwhelming, so you may have left your initial consultation with more questions than you had at the start of your appointment. Do not beat yourself up about it. Many patients have this exact experience, which is why we compiled this list of COPD FAQs for you to consult. You can also use it as a guide at your next appointment.
Before your next doctor’s appointment, read through all of the questions and information above, making sure to take note of any additional questions that arise for you. If you crave additional information about any of the COPD FAQs sections above, write that down, too. Your health care providers want you to be informed, and they want to help you get the information you need. You can help them by getting as much reliable information as you can on your own before your appointments so you know the right questions to ask.
Keep in mind that every patient will have their own unique set of COPD FAQs, depending on their health, their particular case and their familiarity with the disease. Nonetheless, the questions and answers provided above can help to get you started.
No matter what questions you have, remember that COPD is a treatable disease. There are many options available to you, no matter what stage your COPD is, so make sure you include treatments in your COPD FAQs. You will want to review all your options with your doctor to make sure you fully understand what is available to you and when.
Never hesitate to reach out to your health care providers for any question that may come up, whether the questions are on this list of COPD FAQs or not. The more you can learn about your disease, the more empowered you will be to do what you can to stay as healthy as possible for as long as possible.
 Web MD. “COPD (Chronic Obstructive Pulmonary Disease) – Topic Overview.” Accessed February 25, 2015.
 U.S. Department of Health and Human Services. “The Health Consequences of Smoking—50 Years of Progress: A Report of the Surgeon General, 2014.”
 “Global Strategy for the Diagnosis, Management, and Prevention of COPD.” Global Initiative for Obstructive Lung Disease. 2013.
 Ong K, Earnest A, Lu S. “A multidimensional grading system (bode index) as predictor of hospitalization for COPD.” Chest. 2005;128(6):3810-3816.
 National Heart, Lung, and Blood Institute. “What is a Lung Transplant?” Updated May 1, 2011.
by Deborah Leader RN, BSN, PHN